A Note from the CKN Team
CKN Collaborates with the Canadian Fertility & Andrology Society (CFAS) to Benefit Young Adults with Cancer
We are proud to announce that the CKN/CFAS National Oncofertility Database is the first of its kind in the world!! You may be wondering: how did a cancer education resource like CKN get involved with fertility? The answer is simple: we listened….
And after hearing firsthand from young adults with cancer about how unaware this population was about the effects of cancer treatment on their future fertility and the current fertility preservation options available, we decided to use our online platform to build the first Oncofertility Referral Network in Canada. This free network offers patients and oncologists the ability to make instant, online referrals for cancer patients to local fertility clinics in their area. We also included a library of the most-up-to date research in oncofertility and fertility preservation written by the world leaders in this field.
Once the Referral Network was off the ground we became aware of a new need; a need which, after some collaborative meetings with the CFAS, quickly turned into our next project: The CKN/CFAS National Oncofertility Database Project. This project was created to gather data from fertility clinics across Canada with the purpose of creating a baseline from which to track fertility preservation referrals and decision-making for cancer patients. The database anonymously gathers
information about the patient as well as about the specialty of the referring physician and stores it on our secure system. In the future, this information will be studied in order to improve the status of fertility preservation for young adults with cancer by monitoring who is making the referrals, who is receiving them, and patient decision-making about the use of preservation technology.
We launched this project on December 1, 2015 using the CKN platform, with 38 clinics across Canada signed on to participate. The database has been very busy in the initial 6 months since launch, and we expect an even higher participation rate in the second half of the year.
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Oncofertility Referral Network
Oncofertility has emerged as a new interdisciplinary approach to address the reproductive future of young men, women, and children facing a life-preserving but fertility threatening cancer diagnosis. The CKN Oncofertility Referral Network is a nationwide platform that links patients, physicians and fertility clinics to ensure time-sensitive needs are met in providing fertility options for young cancer patients as they embark on treatment.